17 November 2023
At BIRD we are very happy to share and celebrate Melanie (Brooke) Turfrey, BIRD Patient and Public Engagement Director, receiving ‘Highly Commended’ in the Bath & North East Somerset Community Leader Award category. Mel has made an outstanding difference to the lives of patients with rheumatic diseases in Bath, NE Somerset and West Wiltshire (also around the UK) through her role as Patient and Public Engagement Director at Bath Institute ...
13 November 2023
In two podcasts Mel Brooke talks about pain with Dr Ben Davies, Advanced Physiotherapist Practitioner, RNHRD. Topics range from understanding the history of how pain is viewed, to discussing how to still be ‘you’ when coping with long term pain with rheumatology conditions.
2 November 2023
To register for our forthcoming axSpA patient information webinars please use the following Eventbrite link to secure your place. The webinars will be on Zoom.
Webinar Series Overview:
We are offering a series of four distinct themed webinars, allowing individuals to attend based on their specific interests and needs. There is no obligation to attend all four; participants are welcome to choose the sessions that align with their preferences and requirements. (More details of ...
25 October 2023
Our podcast library to help patients better understand and manage their rheumatology condition now has over 50 episodes. As well as covering many different specific conditions we also have podcasts to help with wellbeing. Visit our Patient Podcast page for the full list: https://lnkd.in/dTkqxT3
We are very pleased this is proving a popular resource for patients and our thanks to all the speakers from the Royal National Hospital for Rheumatic Diseases and other organisations.
28 September 2023
We are delighted to have published 2 more new podcasts to add to our patient information library:
The New British Society for Rheumatology (BSR) Guidelines for Myositis with Dr Sarah Tansley.
Over 2 episodes Mel Brooke, Patient and Public Engagement Programme Director (BIRD) talks with expert guest Dr Sarah Tansley, Consultant Rheumatologist at the RNHRD (Bath) and Senior Clinical Lecturer at Bath University. Sarah explains what the BSR guidelines are, who they are for and what they contain. ...
17 September 2023
HRH The Duke of Edinburgh, KG GCVO and Chancellor of the University of Bath signs BIRD’s entry to the University’s Roll of Honour at the Guildhall in Bath. Shane O’Reilly, Chair of the Education and Engagement Committee, Patient trustee (left) and Celia Mead, Executive Director (right) look on. Shane said: “We are thrilled that our support for research into rheumatic diseases is recognised in this way and we remain committed to research collaboration in the future with the University”.
31 August 2023
We are really pleased to release 2 new patient podcasts: ‘Nutrition, Diet and Arthritis’. These 2 episodes add to our podcast topics covering wellbeing for patients with rheumatic conditions. Previously published podcasts discuss ‘Fatigue’, ‘Sleep’ and ‘Social Prescribing’. We hope you enjoy listening and find them useful.
We always appreciate feedback on our podcasts, either through the survey that appears at the end of the podcasts on Spotify or via an email. Patient engagement is very important to us, so ...
27 June 2023
If you are a patient at the Royal National Hospital for Rheumatic Diseases (RNHRD) or the Therapies Centre at the Royal United Hospital in Bath, have a look in their receptions for our Summer Newsletter. We hope that the newsletter will help patients understand the work of BIRD, guide them to our podcast library to help them manage their condition and also encourage them to get involved in research.
A copy of the Newsletter can also be viewed here:
6 April 2023
During the Covid 19 Pandemic BIRD’s patient engagement programme was effectively cancelled as we used to hold in person ‘Patient Information’ events. The events aimed to educate and give patients knowledge and confidence to be able to manage their rheumatology condition. However, this obviously had to stop during the pandemic.
28 March 2023
We are really pleased to release a new set of 3 podcasts, which are slightly different to our existing podcast episodes. Three new podcasts aim to update patients on the latest treatment guidelines for Psoriatic Arthritis (PsA) and Osteoarthritis (OA). If you have already listened to our other podcasts in these condition series, then these latest ones will also be helpful for you when managing your condition.
Listen to them via our podcast page.
24 March 2023
Some of the BIRD Team were delighted to attend the Bath Life Awards last night. We were Finalists in the Charity category, included in this group were other wonderful local charities and congratulations to Bath Welcomes Refugees who were the eventual winners. However, BIRD received ‘Highly Commended’ which we are delighted with. Our nomination focused on the success of our growing Patient Information Podcast library for rheumatology conditions. So, thank you to all those involved in the programme, speakers and ...
13 March 2023
RNHRD Research Showcase Event
11am to 4pm 25th March – Bath Royal Literary and Scientific Institute (BRSLI), 16-18 Queen Square, Bath
This is the first time that the Royal National Hospital for Rheumatic Diseases (RNHRD), Royal United Hopsital Bath, has hosted such an event, with support from BIRD, GW4 and the University of Bath. Consultants and researchers from the RNHRD will give talks on different topics (see the programme) and there will also be research posters available to view. Early ...
7 March 2023
Really good to see the results of a study partly funded by BIRD receiving coverage. This was also one of the research study participation invites that we shared with our followers a while ago, so thank you to anyone who contributed.
Here’s the link to the news article:
16 January 2023
At BIRD we aim to give patients the opportunity and confidence to become involved in rheumatology research projects. Throughout the year, through our mailing list and social media, we post research questionnaires or invites to become involved in projects. Also, Researchers approach BIRD for help and advice on engagement in research with patient priority in mind. To help tell the story of our involvement in research we’ve curated two case studies to showcase our work. 1 from the perspective of ...
11 January 2023
RNHRD Research Showcase event
BIRD is pleased to be supporting this new event. We will be there with a stand and the RNHRD is leading the content for the day. You do need to register to attend, details are as follows:
Bath Royal Literary and Scientific Institution, Saturday 25th March, 2023
The University of Bath, in conjunction with the Royal National Hospital for Rheumatic Diseases (RNHRD), GW4, and the Bath Institute for Rheumatic Diseases (BIRD), is ...
9 January 2023
Bath Institute for Rheumatic Diseases (BIRD) is keen to encourage health professionals based in the RNHRD to attend BSR and EULAR in 2023 as part of encouraging all clinical staff to be research-active and the RNHRD’s reputation for research excellence. Bursaries are available for virtual registration fees.
BSR (Manchester and online) 24-26 April 2023
EULAR (Milan and online) 31 May-3 June 2023
To apply email Celia Mead, Executive Director, BIRD firstname.lastname@example.org by February 28, ...
23 December 2022
BIRD were delighted to co-host the third Skin@Bath Network Symposium with 170 participants from 13 countries, 103 of which attended the event in person despite challenges of cold weather, icy roads and train strikes. Over 55 talks and 26 posters were presented within two days by prestigious national and international clinicians, healthcare professionals and scientists as well as early career researchers, medical trainees and postgraduate students. Thanks to Professor Ian White, Vice Chancellor ...
19 December 2022
BIRD’s latest podcast series is now available for patients with fibromyalgia. In a series of 4 podcasts we talk to experts from the Royal National Hospital for Rheumatic Diseases (RNHRD), Bath UK. Visit our podcast for patients page to listen.
Join us for this first episode in our podcast series about Fibromyalgia Syndrome (FMS). Listen along to the discussion as ...
5 December 2022
Our thanks to everyone who attended our recent axSpA webinar. It was lovely to welcome you. This was BIRD’s second axSpA webinar, the first in 2021. The attendance figures were significantly higher than 2021 and we are glad the webinars are proving a useful tool for patients living with axSpA.
Dr Raj Sengupta, (Consultant RNHRD) talked patients through an overview of axSpA and recent research finding. Dr Thomas Williams (Consultant, Great Western Hospitals) presented on medications for axSpA and Dr ...
22 November 2022
Join us for our Patient Information Zoom webinar for Psoriatic Arthritis. BIRD will be joined by specialist consultant speakers from the Royal National Hospital for Rheumatic Diseases (RNHRD), Bath. During the webinar topics covered will be an overview of PsA, medications, treatments, research and others. There will also be a Q&A at the end of the session. Our aim is to help you better understand and manage PsA and give you more confidence when speaking to your healthcare providers in ...
31 October 2022
To co-incide with Psoriasis Awareness week 2022 BIRD has published an extra PsA podcast episode for our existing PsA podcast library. This extra episode talks about the ways you can self-manage the skin symptoms of Psoriasis. Mel Brooke, Patient and Public Engagement Programme Director (BIRD) talks with expert guest Dr Charlotte Gollins, Dermatology Registrar and clinical research fellow at the RNHRD, RUH, Bath who talks us through some basic background information, sub-types of Psoriasis and treatments that ...
26 October 2022
Two new patient information podcasts published for Sjogren’s. Mel Brooke, Patient and Public Engagement Programme Director (BIRD) talks with expert guest Dr Victoria Flower, Consultant Rheumatologist at the RNHRD (Bath) who explains about the symptoms that people with this condition can experience and the types of diagnostic techniques used, as well as medications and treatments.
Visit our Patient Podcast page to listen, or via your usual listening platform.
24 October 2022
We were very happy to see news of our podcast listening figures celebration featured in the local Bath press.
Celia Mead, our Director was also interviewed on BBC Radio Bristol Breakfast show.
You can listen using the link to the show here:
The interview was between 9.42am-9.52am on sat 15th Oct so scroll along the bar at the bottom of the screen until you get to 3 hours 42mins and 42 seconds. The interview was approx 10mins and ...
11 October 2022
Offering help with rheumatic diseases
This month, Bath Institute for Rheumatic Diseases (BIRD) celebrates over 10, 000 listens of its Podcast Library which provides information to patients, families and carers on advances in treatments, therapies and how to live well with the symptoms of different rheumatic diseases. This is approximately 500% more patients reached each year than through BIRD’s previous programme of live events.
Thirty-six podcasts have been produced since 2020 on individual ...
16 September 2022
Please click here to see our latest newsletter with lots of BIRD Charity news to report.
18 August 2022
BIRD, in collaboration with the University of Bath and local experts at the RNHRD, funded another successful summer student scholarship. BIRD funded £3, 120 for the studentship which was hosted by the Department of Computer Science at the University of Bath.
This year, BIRD’s 2022 summer student, Louis Godtfredsen, worked with lead supervisor, Dr Christopher Clarke, and co-supervisors, Dr Dario Cazzola & Dr Raj Sengupta, on the project ‘Automating the BASMI Measurement Using Pose Tracking on a Smartphone’.
The aim ...
21 July 2022
We are delighted to announce that our new series for Lupus is now available to listen too. There are 3 podcasts designed to help patients better understand and manage Lupus:
16 June 2022
Are you interested in joining our Patient Research Panel? It’s a small group whom we email and meet over Zoom once a year. The patient panel helps us to help rheumatology researchers gain patient insight into designing rheumatology research projects? It’s not a big commitment, just reading through the occasional document or survey and commenting from your patient perspective. Mel Brooke our Patient Engagement Director leads the group and it’s very friendly and informal. Email: PPE@birdbath.org.uk if you are ...
9 June 2022
BIRD funded two clinicians to attend the key annual conference run by the British Society for Rheumatology in Glasgow at the end of April, as part of a new bursary scheme to help early career stage specialists take up research. Jade Skeates, Team Lead, Rheumatology Physiotherapy at the RNHRD, said: “I chaired my first conference session, and it was great to see the session I had proposed and facilitated come together, reaching over 350 people. I attended updates on Spondyloarthritis, ...
26 May 2022
16 May 2022
Our Patient Engagement Programme Director, Mel Brooke has been speaking to 3 patients who have very kindly agreed to share their experiences of their rheumatology condition and how BIRD resources have helped them. Please do have a read and visit our BIRD patient podcast page.
Our sincere thanks to the Case Studies contributors.
6 May 2022
Are you looking for a chance to use your life experience and skills to shape a small but successful charity? Do you care about the future of BIRD? We’re looking for two new trustees. People with a rheumatic condition and/or without previous experience of trusteeship are very welcome, we will provide all the support you need. Our goal is to keep Bath on the international map for rheumatology research through supporting arthritis research, education and patient engagement. Our trustees are ...
5 May 2022
For the first time BIRD was delighted to be able to showcase our Patient Engagement programme at the British Society for Rheumatology Conference in Glasgow this year. Thanks to generous sponsorship from Lily we are able to promote and network for further patient engagement opportunities. It was also great to see many of our patient podcast speakers from the RNHRD, Bath at the conference, as well as make new connections.
We have plenty of new ideas and topics for podcasts ...
11 April 2022
BIRD would like to thank all the consultants and physiotherapy RNHRD speakers who contributed to our 2 latest patient information webinars. During March 2022 we hosted 2 online webinars, Rheumatoid Arthritis (RA) and Psoriatic Arthritis (PsA).
Each webinar covered topics such as an overview of the condition, medications, research and physiotherapy tips, with a Q&A session at the end. All the participants were extremely grateful to have the opportunity to learn and be able to ask questions to the consultants, ...
10 March 2022
BIRD has just published a new series of podcasts to add to our growing podcast library for rheumatology patients. We talk to consultants and specialist physiotherapists from the Royal National Hospital for Rheumatic Diseases (RNHRD), Bath, UK. If you’d like to find out more about Osteoarthritis please listen via your favourite app or via our podcast page on this website:
The episodes are:
7 February 2022
BIRD is pleased to announce 2 new Information Webinars:
16th March 2022 AM – Rheumatoid Arthritis
23rd March 2022 2-4.30pm – Psoriatic Arthritis (PsA)
Each webinar will involve consultants from the Royal National Hospital for Rheumatic Diseases (RNHRD) discussing an overview of the condition, medications and latest research. Specialist physiotherapists will give advice. Join us for an informal webinar to help you understand and manage your condition better.
To register your interest please click on the following links or email: ...
13 January 2022
In this episode of our podcasts to help people who have rheumatic conditions with aspects of symptom self-management and wellbeing, Mel Brooke, Patient and Public Engagement Programme Director (BIRD) talks with Sandi Derham who is a Rheumatology Occupational Therapist, Clinical Specialist at the Royal National Hospital for Rheumatic Diseases at the RUH, Bath. Sandi talks about the symptoms and impacts of fatigue and shares some useful tips and advice to help you self-manage it.
Visit our podcast page to listen: ...
13 January 2022
The Dermatologist interviewed BIRD’s executive director about the recent award of the Amgen Uplift Innovation award, see link here:
10 January 2022
BIRD is the local charity working with patients to fund arthritis research and education in Bath and is pleased to announce it is funding another summer student scholarships. The studentships are run in conjunction with the University of Bath and colleagues at the Royal National Hospital for Rheumatic Diseases (RNHRD).
The University of Bath has a long-standing and internationally recognized reputation for high quality research with an overall aim of improved healthcare outcomes and the RNHRD has a ...
6 December 2021
Dr Prasad Nishtala from University of Bath got in touch with us in 2020/2021 to invite our research motivated patients in BIRD’s network to share views on a project looking at “Artificial intelligence for identifying new disease clusters in patients with immune-mediated inflammatory disease (AI-IMID)” Dr Nishtala told us that a broad team of experts in immune-mediated inflammatory diseases (IMIDs) and experts in artificial intelligence (AI) were collaborating and putting together a ...
19 November 2021
BIRD is thrilled to win the Amgen UPLIFT Innovation Challenge worth $25, 000 for its development of digital support for patients. “Getting global recognition for the innovative response of our patient engagement programme during these difficult times is wonderful, ” said Celia Mead, Executive Director, “we will now be working on clinician led webinars and more social media promotion of our new podcasts to reach thousands more patients with psoriatic arthritis, deepening their knowledge, filling in gaps between appointments, building ...
9 November 2021
In this episode of our podcasts to help people who have rheumatic conditions with aspects of self-management and wellbeing, Mel Brooke, Patient and Public Engagement Programme Director (BIRD) talks with Sandi Derham who is a Rheumatology Occupational Therapist, Clinical Specialist at the RNHRD (Bath). Sandi talks through the process of sleep, the importance of getting enough of it and the kinds of things that might disturb it. She then shares some tips and advice on how you might be able ...
3 November 2021
The Trustees of BIRD have finalised their Annual Report, praising the excellent adaption during the pandemic. In particular BIRD switched to virtual delivery of professional education and patient information and spent an extra £20, 000 on extensions to research projects, where they were impacted by lab closures and difficulties in patient recruitment.
The key achievements over the last year were noted as:
29 October 2021
BIRD is delighted to receive £4, 000 from the Hospital Saturday Fund towards its Patient Engagement Programme. “HSF were impressed with BIRD’s switch to online provision during the pandemic, in particular the development of podcasts and now webinars”.
4 October 2021
Listen to our latest series of podcasts covering Rheumatoid Arthritis. In a series of 3 podcasts we talk to Dr Andrew Allard from the Royal National Hospital for Rheumatic Diseases (RNHRD), Bath and Clare Jacklin from National Rheumatoid Arthritis Society (NRAS). Topics cover an overview, medications, treatments and an update from NRAS. Many thanks to our speakers and we hope you enjoy listening. Visit our podcast website page for the full list of podcasts.
2 September 2021
Call for Grant Applications in Rheumatology Research – Deadline 30th November 2021
Bath Institute for Rheumatic Diseases (BIRD) exists to support arthritis research, education and patient engagement. We fund research projects in rheumatic diseases which:
We look to award pump priming funding of small to medium-sized grants that would be ideally suited to pilot studies, preliminary research, tests of clinical effectiveness ...
28 July 2021
Today we launch BIRD’s first ever silent auction, running for 3 days until midnight on Friday 30th July.
Local companies have generously donated unique prizes for you to bid on. Whether you are interested in relaxing at a Spa or want to enjoy fascinating views of Bath from a sky-high perspective, or just love fine dining, we have the prize to suit you.
The funds raised from this auction will help finance our research and patient engagement initiatives. You would therefore ...
22 July 2021
BIRD is delighted to have received £1000 from Bath Boules charitable trust to promote its upcoming Osteoarthritis podcasts and to make webinars for patients and their carers. Good luck to all teams taking part in Bath Boules tomorrow!
21 July 2021
The Post-traumatic Osteoarthritis Support Tool (POST) study.
Knee-related post-traumatic osteoarthritis (PTOA) is a type of osteoarthritis which affects young people with a history of joint injury including fracture, ligament rupture, joint dislocation, or meniscus tear.
The project set out to:
– Understand the lived experience of early-onset PTOA symptoms and medical care-seeking behaviours of young people with a history of knee joint injury.
– Develop and conduct initial evaluation of a symptom self-management tool to promote healthy behaviours (e.g., physical ...
20 July 2021
Self-Management & Wellbeing for people with rheumatic conditions: Social Prescribing
In this first episode of our podcast series about Self-Management and Wellbeing, Mel Brooke, Patient and Public Engagement Programme Director (BIRD) talks with Rachel Dawson, Social Prescribing Link Worker with the Minerva Primary Care Network. Rachel walks us through what Social Prescribing is, how to access it and ways it may be able to support you. Visit our podcast page to listen.
15 July 2021
We are very excited to announce BIRD’s first ever virtual auction will be taking place from July 28th to 30th. We are gathering amazing experiences and prizes for you to bid on. This is a project led by students from the University of Bath and all funds raised will go towards our research and patient engagement programmes. More information on how to get involved will be coming very soon. Keep an eye on our Facebook page as ...
14 June 2021
We has been busy setting up BIRDs new ‘Patient Research Panel’. This is a group of research interested patients who we can contact from time to time to review, comment or get engaged in the requests for help or participation that come through BIRD. The panel will be made up of people with a mix of rheumatic conditions who are open to various types of patient research engagement that might include a range of researcher requests to help with things ...
11 June 2021
Listen to our latest series of podcasts on Psoriatic Arthritis (PsA). Visit our podcast page to find the 4 episodes:
Podcast 1. Psoriatic Arthritis – An overview with Dr Ellie Korendowych, Consultant Rheumatologist at the RNHRD, Bath.
Podcast 2. Psoriatic Arthritis – Medications and Research with Dr William Tillett, Consultant Rheumatologist at the RNHRD, Bath.
Podcast 3. Psoriatic Arthritis – why it’s important to stay active and how with Jade Skeates. Clinical and Team Lead, Rheumatology Physiotherapy, RNHRD, Bath....
11 June 2021
Research News 2: PREVeNT RA: A Nationwide register of first-degree relatives of patients with Rheumatoid Arthritis (RA) to evaluate predictors of the development of RA
BIRD have been asked to let you know about the study above. The aim of the study is to identify risk factors for developing RA by studying people who are first-degree relatives of someone with RA, but do not themselves have RA. The study will look at the genetic, environmental and other factors to understand ...
11 June 2021
Research News 1: MI-PART Study
We are keeping track of the Mi-PART for Psoriatic Arthritis study that some BIRD followers will have participated in and asked the research team for an update we could share. It’s no surprise to hear that Covid has hampered recruitment but we heard the team at Bath University have done a sterling job and were able to recruit the bulk of the Bath cohort. In addition there have been 2 x London PsA cohorts and ...
10 June 2021
BIRD are delighted to have received another grant for 2021 to continue to produce our rheumatology podcasts. This is the second grant we have received from Healthwatch BANES and is awarded to help develop new podcasts on different rheumatology conditions. Our sincere thanks to Healthwatch BANES for their continued support and also to the speakers from the Royal National Hospital for Rheumatic Diseases (RNHRD) for participating. To date BIRD have published podcasts covering Myositis, Osteoporosis, Vasculitis, Young Adult Arthritis, ...
1 April 2021
Call for Grant Applications in Rheumatology Research – Deadline 31st May 2021
Bath Institute for Rheumatic Diseases (BIRD) exists to support arthritis research, education and patient engagement. We fund research projects in rheumatic diseases which:
We look to award pump priming funding of small to medium-sized grants that would be ideally suited to pilot studies, preliminary research, tests of clinical ...
30 March 2021
Listen to BIRD’s new series of 3 patient podcasts for Scleroderma. Scleroderma comes under the umbrella term for Systemic Sclerosis which also includes Raynaud’s phenomenon. We interview Dr John Pauling, Consultant Rheumatologist at the Royal National Hospital for Rheumatic Diseases (RNHRD), Bath, UK, about symptoms, medications and research. Visit our podcast tab to find and listen to the podcasts. We hope you enjoy listening.
12 March 2021
BIRD has just published it’s latest charity information leaflet. If you would like a printed or pdf version please email: Admin@birdbath.org.uk
4 February 2021
Dr Ben Mulhearn, Rheumatology Clinical Academic Trainee, is running the Palma half marathon in October 2021 to raise funds for BIRD. He says: “With family links to rheumatoid arthritis and working in the field (as well as having a dodgy knee), this is my way to both raise money for rheumatology research and raise awareness of the discipline of rheumatology, as well as having a great time while doing so”. BIRD is grateful for all donations, large and small, and will ...
28 January 2021
See the attached image for an infographic with the results from a recent survey to our guest expert podcast speakers. All BIRD podcasts are now available on a dedicated page on this BIRD website. Go to the podcasts page to listen to all our published podcasts. More are planned through 2021.
21 January 2021
If you have listened to any of the BIRD podcasts, we’d be grateful if you could spare the time to complete our feedback questionnaire. It should only take a few minutes and is anonymous. Questions centre around podcast topics and mental health. This will help us to find out what you need and to plan the programme for 2021
Thank you so much in advance.
20 January 2021
BIRD has published its headline achievements as a charity in filing its annual report for the year ending March 2020. These were:
7 January 2021
Happy New year from all at BIRD. 2020 was a different year for everyone and our Patient and Public Engagement Programme. Our usual calendar of events for different rheumatic conditions was obviously cancelled. However, the switch to podcasts has been wonderfully successful. There are now 5 series of podcasts covering Myositis, Osteoporosis, Young Adult Arthritis, Vasculitis and Axial Spondyloarthritis (AxSpA). To date the podcasts have been listened to nearly 4000 times, significantly expanding our reach. Our thanks to all the ...
11 December 2020
A new series of 5 podcasts aimed at patients with Axial Spondyloarthritis, and their carers and families has been produced by BIRD. “We know patients are finding podcasts a useful way to learn more about their condition because we can see that hundreds of them are listening to every episode”, said Mel Brooke, Patient and Public Engagement Programme Director. Episodes cover an overview of Axial Spondyloarthritis and medications with Dr Raj Sengupta, Consultant Rheumatologist and Clinical Lead for Axial Spondyloarthritis. ...
27 November 2020
This podcast series is aimed at providing useful information too young adults with rheumatology conditions and one podcast specifically for pregnancy planning. In the first and second episode, Mel Brooke, Patient and Public Engagement Programme Director (BIRD) talks with rheumatology experts and specialist nurses about the process of transitioning from paediatric to adult rheumatology care and how a special clinic for young adults set up at the Royal National Hospital for Rheumatic Diseases, Bath helps with that process. In this ...
15 October 2020
Vasculitis; the Bath Institute for Rheumatic Diseases has launched an informative podcast series where we interview consultants and specialist healthcare experts from the Royal National Hospital for Rheumatic Diseases to help you learn about Vasculitis and understand how it can affect you.Our podcast series will give you an expert overview of vasculitis, the medications used to treat it and we talk to a Specialist Nurse from a special new Giant Cell Arthritis clinic.
Click on the link below to take you to the ...
10 September 2020
A new bird bath and art installation was craned into place outside the Royal National Hospital for Rheumatic Diseases at the Royal United Hospital, Bath this morning, 10 September 2020. It is dedicated to the donors supporting Bath Institute for Rheumatic Diseases (BIRD) by funding scientific and clinical research since 1975. BIRD will be organising an official ceremony later in the year which marks the charity’s relocation to the hospital site. The artwork is called ‘Ascending’ and was sculpted by ...
21 August 2020
Congratulations to Jade Skeates for being chosen as the winner of the Clinical Award 2020 by the Heberden Committee for her abstract submitted to the British Society for Rheumatology Annual Conference 2020 entitled ‘Evaluation of a 10 week progressive resistance training programme for people with inflammatory arthritis’. Jade has received a trophy and £250 as well as publication in the journal ‘Rheumatology’ and the opportunity to present her research at the Annual Conference in 2020. Her abstract was accepted for ...
11 August 2020
BIRD are delighted to publish our latest series of podcasts for Osteoporosis.
Mel Brooke, Patient and Public Engagement Programme Director (BIRD) asks Dr Sarah Hardcastle, Consultant Rheumatologist at the RNHRD (Bath) to tell us what is known about osteoporosis, how it is assessed and to talk about fractures, falls and other risks. We also discuss what treatments exist and the lifestyle factors that can influence the condition.
10 July 2020
Bath Institute for Rheumatic Diseases (BIRD) has been awarded £4, 148 to make and promote a series of podcasts for patients by Healthwatch B&NES from their community pot.
Mel Brooke, Patient and Public Engagement programme director for BIRD said: “We work closely with patients to deepen their understanding of their rheumatic disease and the latest research and treatment available through a well-established programme of information events. We have had to put these on hold due to COVID ...
7 July 2020
BIRD took part in a project to identify good questions for researchers to ask about Fibromyalgia ‘Fibro Fog’. Mel Brooke, BIRD’s patient and public engagement programme Director, helped to organise and co-facilitate three patient workshops with Sandi Derham, Rheumatology Occupational Therapist Clinical Specialist RNHRD & NIHR Academy Member. The results were written up as an abstract submitted as a subject for a PARE (People with Arthritis and Rheumatism) poster for the annual European Congress of Rheumatology (EULAR) conference held virtually ...
1 June 2020
It’s Volunteers Week 2020 and we’d like to say a big THANK YOU to all our lovely volunteers who have helped us at information events, taken part in rheumatology research (including our online workshop) and those who have been helping to evaluate our new podcasts!
18 May 2020
Don’t Forget! Grant applications for rheumatology research need to be received before the deadline 31st May 2020! If you are interested in applying please find our application form and grant awarding policy on http://birdbath.org.uk
27 April 2020
We are pleased to announce we have test run our very first PPE ‘virtual workshop’ – our thanks to the people who came forward to volunteer as a result of last week’s call out and those who participated. The theme was ‘Coping with a rheumatic condition during the Coronavirus lockdown’ and involved through a set of 5 main questions around feeling safe, feeling well, keeping active, mental wellbeing and access to treatment – all designed to initiate discussion and capture ...
3 April 2020
More useful information about Myositis may be found here:
30 March 2020
BIRD’s new Public and Patient Engagement Podcast website. We are really pleased to have uploaded our first podcast for Myositis, which was an event due to take place on the 27th March. Please visit https://anchor.fm/bird-ppepodcasts
On the podcast, listen to Dr Sarah Tansley talking to BIRD’s Mel Brooke about Myositis. The talk is 25 minutes long. Please do bear with us as we test all these new systems.
Below is a snapshot of what the page looks like, when ...
27 March 2020
At BIRD we do hope you are all keeping well. We are all working from home now and testing out all sorts of new systems. As we do our best to continue to provide you with information on rheumatic diseases during this difficult and exceptional time, we have been working on bringing you alternative and innovative ways of accessing it without the risks currently associated with social gatherings. Celia Mead, BIRD’s Executive Director says:
“We must protect all our patients ...
15 March 2020
Congratulations and thanks to all BIRD’s half marathon runners, either who ran in the race or ran an alternative route due to the current climate.
Fantastic effort from all, we very much appreciate your hard work and all of your sponsors generosity, thank you!
This photo taken at the furthest flung point of the race where we cheered them on!
14 March 2020
Due to the current nature of the news and the impact of the covid-19 virus, we have decided to cancel our events planned for March and April:
1. Myositis – 27th March 2020 – CANCELLED
2. Transition from Paediatric to Adult Rheumatology – 14th April – CANCELLED
We are looking at providing the information via online delivery, possibly a podcast or presentation online. We will obviously keep you informed of how these options progress. If you were attending either ...
3 March 2020
Please find the following notice we have received from the Royal United Hospital staff regarding the coronavirus:
Despite press coverage, as yet there there have been no formal recommendations from Public Health England to curtail public freedom of movement. Participants do need to follow the latest Public Health guidance on their website, particularly if they develop symptoms or have traveled to affected areas listed. Usual good hygiene precautions apply regardless and the venue has good access to hand washing facilities. ...
27 February 2020
Sharron Davies MBE, Patron of Bath Institute for Rheumatic Diseases (BIRD), encourages BIRD Bath Half Marathon runners to train professionally, together with physio Vicky Baldy. BIRD is raising funds for research into rheumatic diseases. Sharron says: “We need to look after our bones and joints, so following physio advice is an important part of avoiding injury and improving your speed.” To sponsor a BIRD runner or donate please see our Virgin Money Giving page
19 February 2020
The next phase of the successful Patient & Public Engagement programme will launch in 2020. Having built a strong network reach of over 14, 000 patients and deepened their knowledge of rheumatic disease and some of the research around it, BIRD is now focusing on getting more patient volunteers involved in research itself.
PPE programme director, Mel Brooke said: “BIRD is helping everyone to work together to improve research – patients, clinicians, researchers, the hospital and the university – and ...
23 January 2020
BIRD has 12 runners lined up for the Bath Half Marathon in March. Each has pledged to raise at least £200 for research, using the Virgin Money Giving platform. The ‘team’ met in January to be briefed by physio Vicky Baldy on top training tips, given encouragement by BIRD staff and to plot a photoshoot of their training. More to come in February!
12 December 2019
We were delighted to be involved in the second Skin@Bath Network Symposium, organised by the RUH, University of Bath and BIRD.
Read all about it here https://www.bathecho.co.uk/news/education/university-bath-world-skin-experts-to-city-87805/
Scientists on the cutting edge of skin research gathered in Bath last week to discuss research breakthroughs on skin disorders ranging from eczema and fungal infections to skin ...
16 December 2019
The BIRD office will be staffed intermittently between Friday 20th December 2019 to Monday 6th January 2020, however our email and answer machine will be checked daily throughout the festive period.
We would like to wish you all a very merry Christmas and best wishes for the New Year!
8 November 2019
Following the relocation of the RNHRD, BIRD has now moved to it’s new office at the RUH site.
Whilst this is a big change for all, we are excited about the opportunities the RUH can offer BIRD and we will continue to work closely with the RNHRD Staff to fulfill our research, education and engagement programmes.
Our telephone number and email addresses remain unchanged, but our new address is:
19 September 2019
BIRDs recent information day for people with Ankylosing Spondylitis (AS) held at The Bath Royal Scientific and Literary Institute was again packed this year with in excess of 70 people.
Feedback included: ‘The morning talks [with] Dr Sengupta and Prof Marchesi were fantastic. Really Informative’
‘I enjoyed all of the day, it was interesting and informative’
The day was very well received by the attendees, with an outstanding 98% rating the day excellent or good overall!
Dr Raj Sengupta, a consultant at ...
16 October 2019
Look out for BIRD in the green token scheme in Waitrose Bath this November.
Known as their Community Matters scheme, each month every branch donates £1, 000 between local good causes.
The more tokens we get, the bigger the donation we receive for our rheumatology research projects!
23 September 2019
BIRD helps people with rheumatic diseases through research, education and information. Rheumatology is the study and treatment of arthritis, including a number of autoimmune diseases, pain disorders affecting bones, joints, soft tissue and tendons. In the long term, our work helps almost everyone because only one person in fifty will escape some form of rheumatic complaint in their lives.
So, while you’re fit and healthy enough to enjoy running long distance, we are asking you to consider helping us. BIRD has secured special charity entries to the Bath ...
13 September 2019
BIRD is delighted to announce two new Patrons: Professor Bernie Morley, Deputy Vice-Chancellor and Provost of the University of Bath. His current role is strategic, however his previous research was focussed on the genetics of autoimmune diseases, specifically Systematic Lupus Erythematosus.
Sharron Davies, MBE, former British champion Olympic swimmer and television presenter. Her experience of peak fitness, and indeed the injury that goes with athleticism, gives her insight and sympathy for those with musculo-skeletal bone and joint conditions.
The Right ...
13 September 2019
BIRD said farewell to being located at the Royal National Hospital for Rheumatic Diseases with a showcase event. A toast was raised to the famous Mineral Hospital, one of the first national hospitals in the country. Researchers funded by BIRD explained their work to donors, volunteers and staff by presenting scientific posters. Two new patrons of BIRD were announced. A video of the sponsored skydive by BIRD trustee Stephanie Lear was shown. And BIRD’s participation in the next Bath Half ...
11 June 2019
The National Lottery Community Fund has awarded BIRD £9, 000 for its Patient and Public Engagement (PPE) programme.
The funding will be used by the Programme Director, Mel Brooke, in running patient research activities as well as a series of free information days, patient support hubs and newsletters.
Mel said: “People can feel very anxious or isolated when they are diagnosed. Finding other people to talk to, and share experiences with, is an important ...
29 June 2019
Volunteer patient participants and researchers took part in a research Focus Group hosted by BIRD to discuss plans for a new smartphone app to monitor rheumatoid arthritis disease activity between appointments.
Leading the group discussion was Dr Bashaar Boyce, Rheumatology Consultant RNHRD and Dr Phil Hamann, Clinical Lecturer, University of Bristol who explained why it would be so useful for both clinicians and patients.
There was plenty of discussion throughout the session and, after ...
22 June 2019
BIRD has agreed to fund 9 months’ salary costs for University researcher Ms Amelia Green’s time to complete work looking at factors that may predict the onset of psoriatic arthritis in people with psoriasis, as part of a broader study. This will allow the research team to take maximum advantage of the rich dataset on file (over 100, 000 patients).
In particular, she will investigate the prevalence, incidence and evolution of musculoskeletal symptoms reported to ...
Our work is built on the kind donations and bequests of previous generations. If you like what we do and would like to help, please consider giving us a donation, or a gift in memory of someone dear to you, inscribed on our benefactors’ board, or even a legacy. £100 covers our monthly IT costs. £500 sobers all the costs of a patient information event. £2000 would pay for a Summer Studentship for a scientific researcher. £10,000 would fund a small-scale pilot research project.